Thursday, December 11, 2014

Welcome to the world Billy Pax and Matt

We made it to 31 weeks exactly on 11/18/14. After 2 weeks of labor and massive amounts of fluid build up from baby B (AKA William Pax), my body couldn't hold off any more. I won't go into the massive ways my body was shutting down, but it was very bad. It's called Mirror Syndrome and it happens with hydrops. Bily's hydrops never resolved and his left lung never developed. The docs tried and he lived for 10 days, but in the end they couldn't get his lungs to support his little body. He died in our arms on 11/28/14. ............................................................................................................................... His twin brother, baby A, Matt, is doing very well. He faces all the challenges of a preemie, but has faced no additional challenges. His breathing is great, his growth is fine and he's taking his feeds well by ng tube. Hopefully, over the next few weeks, he'll start waking up more and taking more feeds by mouth. He's 34 weeks now, so maybe in the next 3-4 weeks, he'll be able to come home.